Gabe watching Ice Age 2 with the family says "Mom that mammoth is GREEN!" I said "No, it isn't" Had a 5 minute argument over the color of the mammoth. For the record, it was BROWN. I guess the color receptors are starting to lag...
The March for Life went well, Gabe was able to "talk story" with a few people and show off his display board. A couple of the people he spoke too were also dealing with eye issues. He had a good time and it was a good experience for him.
Created a facebook community page with the same name as this blog. Please check it out and add it to your page favorites if you do the facey spacey thing...Share with your friends.
Gabe has a dental appointment next week where I will be discussing with the Dentist the possibility of Gabe's teeth abnormality being linked to CRD. Apparently, there is a genetic tooth abnormality associated with the same gene mutation that results in CRD. More info to come...Still researching and awaiting the outcome of his visit. The reason for concern being that just prior to his CRD diagnosis, the Dentist discovered strange pits or circular holes in several of Gabe's teeth. The enamel was breaking down in strange patterns. This is now believed to be linked...Guess we will find out soon enough.
Tuesday, February 1, 2011
Saturday, January 22, 2011
Blog Expanding via Facebook
Aloha to all! Blogger was a great start, but Facebook has proven to be easier to navigate, has higher traffic, and I can post pictures on it! I invite you all to check out Gabe's BRAND NEW community page at
http://www.facebook.com/note.php?created&¬e_id=177402535630025&id=139104842817747#!/pages/Mine-Eyes-Shall-See-the-Glory/139104842817747
If this link doesn't work for some reason, simply go to Facebook and type in the name of THIS blog, Mine Eyes Shall See the Glory. It should pop up. Thanks so much! I will be maintaining this blog in addition to the Facebook page, but if you all migrate with me, this page may get shut down eventually...God bless!
http://www.facebook.com/note.php?created&¬e_id=177402535630025&id=139104842817747#!/pages/Mine-Eyes-Shall-See-the-Glory/139104842817747
If this link doesn't work for some reason, simply go to Facebook and type in the name of THIS blog, Mine Eyes Shall See the Glory. It should pop up. Thanks so much! I will be maintaining this blog in addition to the Facebook page, but if you all migrate with me, this page may get shut down eventually...God bless!
Friday, January 21, 2011
Hawaii March for Life, January 22nd
January 22, 2011, Saturday, Hawaii State Capitol Grounds, Live stream by HICTv. Pro-Life sign-waving & entertainment begins at 10:30 a.m. Keiki Fun Activities begin at 11:00 a.m. Program begins at 12:00 noon: Gabe will be at the Hawaii Helps Disabilities (HHD) table, talking story about his eye disease & showing his display board. Come out & show him some support folks!
I am so proud of Gabe! He is going to put himself in the public eye for the first time, talking about CRD!!! He won't be up on a stage with a mic or anything, but this is a very important first step towards raising awareness for all peoples in Hawaii with visual impairments!
Also, HHD is seeking donations of audio books on tape, CD, mp3, magnifying devices, and audio reader machines for our future resource lending library for the visually impaired. All donations will be tax deductible.
I am so proud of Gabe! He is going to put himself in the public eye for the first time, talking about CRD!!! He won't be up on a stage with a mic or anything, but this is a very important first step towards raising awareness for all peoples in Hawaii with visual impairments!
Also, HHD is seeking donations of audio books on tape, CD, mp3, magnifying devices, and audio reader machines for our future resource lending library for the visually impaired. All donations will be tax deductible.
Saturday, November 27, 2010
New Opportunities to Share Gabe's Story
Even as I prepare for our upcoming adventure/vacation at Disney World, I find myself being continually challenged. I was inspired late last night to type out Gabe's story and submit it to Guideposts which is an inspirational inter-faith publication that specializes in short stories about everyday people facing obstacles in their lives. The manuscript flowed well and was submitted successfully online, in the wee hours of this morning. I am praying that it find the hands and eyes of the person for whom it is intended.
Gabe and I will also be setting up a booth at the March for Life, in cooperation with Hawaii Helps Disabilities (a nonprofit organization run by our good friend Kimberly Selden) here in Honolulu this coming January. We will be utilizing the presentation board that Gabe created for his 5th grade class at school, and are excited about the opportunity to put the word out about CRD.
Gabe is also excited because he has been given yet another gadget to use both at home and at school. It is one of those audio readers which allows him to download books and then reads them aloud to him as he follows along. If and when the time comes, he will be able to hear his favorite stories, even if he can no longer see to read them.
Gabe and I will also be setting up a booth at the March for Life, in cooperation with Hawaii Helps Disabilities (a nonprofit organization run by our good friend Kimberly Selden) here in Honolulu this coming January. We will be utilizing the presentation board that Gabe created for his 5th grade class at school, and are excited about the opportunity to put the word out about CRD.
Gabe is also excited because he has been given yet another gadget to use both at home and at school. It is one of those audio readers which allows him to download books and then reads them aloud to him as he follows along. If and when the time comes, he will be able to hear his favorite stories, even if he can no longer see to read them.
Monday, October 18, 2010
Los Angeles IS city of Angels!
As I sit in the USO at LAX airport, I have just a moment to reflect upon the events of the past 3 days. First, Gabe and I were treated to a tour of LA by one of the angels in our life whom we met last year at Disney. Holly drove us around to see the Kodak theatre (think Oscars & red carpet), & also to see the walk of fame (all the stars). After lunch in the Hollywood Hard Rock Cafe, we drove down Rodeo Dr. (INCREDIBLE) We then retired to the hotel to chillax and wait for the main event! Gabe & I flew to LA to see & meet Tony Hawk, who is only one of the greatest skateboarders of..oh...I don't know...All time? My son was offered the opportunity of a lifetime by Lenore, director of Tony Hawk's fan club (also his big sister). He experienced VIP treatment at one of the most exclusive skate events of Tony Hawk's calendar in Beverly Hills. The Hawk family are all such good people...Gabe is returning home with memories that will last his lifetime as well as priceless memorabilia, all autographed. I am blown away by the generosity of the Hawk family & their willingness to reach out to my son to fulfill one of his dreams. I am forever in their debt. We will never forget all the acts of kindness we encountered in the city of Angels...
Friday, October 8, 2010
Beiber Fever, Beverly Hills, & a mouse
Well, thanks to a friend who developed a sudden case of Tourettes, Gabe found out about the trip to Beverly Hills/Tony Hawk. He almost peed himself he was so excited. LOL :P Showed him pictures of the hotel we will be staying at and a video preview of what the skate event will be like. Packing the suitcases already. Mom has to look good for Rodeo Drive. My money should last about 4 miliseconds there...
Tonight is Gabe's first big concert at the Blaisdell Arena in Honolulu. Beieber fever has hit the island! Concert tickets sold out in 20 minutes when they went on sale last month. My friend and I conspired to get a VIP 4pack of the highly coveted tickets so Gabe gets to attend with his "girlfriend" Anu, neighbor friend Stevie, and the babysitter. I refuse to suffer thru Beiber...Heck I don't even know if I am spelling the poor kid's name right.
I had a "mom pity party" moment the other day. I was scrapping (scrap booking) and had to put together Gabe's last karate page. It was kind of sad because he won't be going back to karate. He was able to earn a green belt before CRD decreased his vision. I suppose he could have continued on for a bit, but he said "gee mom, how many blind senseis do you know?" Smart kid. Too smart. Besides, he wanted to take weapons training and of course that could not be done due to safety issues. On a brighter note, he is taking to the guitar nicely.
We are planning a family vacation to Disney World for Gabe's birthday which is December 15th. Seeing Mickey Mouse for birthday/Christmas should be very memorable for both of my kids.
Tonight is Gabe's first big concert at the Blaisdell Arena in Honolulu. Beieber fever has hit the island! Concert tickets sold out in 20 minutes when they went on sale last month. My friend and I conspired to get a VIP 4pack of the highly coveted tickets so Gabe gets to attend with his "girlfriend" Anu, neighbor friend Stevie, and the babysitter. I refuse to suffer thru Beiber...Heck I don't even know if I am spelling the poor kid's name right.
I had a "mom pity party" moment the other day. I was scrapping (scrap booking) and had to put together Gabe's last karate page. It was kind of sad because he won't be going back to karate. He was able to earn a green belt before CRD decreased his vision. I suppose he could have continued on for a bit, but he said "gee mom, how many blind senseis do you know?" Smart kid. Too smart. Besides, he wanted to take weapons training and of course that could not be done due to safety issues. On a brighter note, he is taking to the guitar nicely.
We are planning a family vacation to Disney World for Gabe's birthday which is December 15th. Seeing Mickey Mouse for birthday/Christmas should be very memorable for both of my kids.
Friday, September 24, 2010
Playing a game of clue
So, the trip to Beverly Hills is all set up. My son STILL has no clue where we are going or what we will be doing there. *insert evil chuckle here* He saw that I had bought a new suitcase, and began to get curious. I decided to make the surprise more fun by playing a little game of clue with him. He can ask yes or no questions, and I have given him hints like "it will be between now and Christmas" and "it's happening on the West Coast" hehehe. This is fun. He is writing a list of clues as he gets them and I am waiting to see just how smart my son really is. Will he figure it out by the big day??? In order to up the ante, I bought him a Tony Hawk tech deck today and told him that the trip might have something to do with skating...He asked if we were going to Skateland U.S.A. (old stomping ground for me & the hubby back in the day). I just chuckled and said "no".
On the school front, homework has gotten much easier due to the teachers' enlarging his worksheets. He is still struggling with his reading which is somewhere in the early 5th grade level. Now that he has the right tools, he is beginning to read for pleasure once again. That is encouraging. If he sticks with it, I am sure his fluency and comprehension will improve.
Gabe is religious about taking his supplements, and we bought one of those nifty pill cases with all the days of the week on it. He got a kick out of it because he noticed the braille dots on the covers. It is amazing how you begin to notice things only when they suddenly become part of YOUR reality. He is thinking ahead (WAY ahead) and has expressed that if & when he needs a service animal, he would like a German Shepherd. Good choice ;) Smart, loyal, fiercely protective, hard working, and beautiful. Just like my son. I couldn't think of a better fit.
On the school front, homework has gotten much easier due to the teachers' enlarging his worksheets. He is still struggling with his reading which is somewhere in the early 5th grade level. Now that he has the right tools, he is beginning to read for pleasure once again. That is encouraging. If he sticks with it, I am sure his fluency and comprehension will improve.
Gabe is religious about taking his supplements, and we bought one of those nifty pill cases with all the days of the week on it. He got a kick out of it because he noticed the braille dots on the covers. It is amazing how you begin to notice things only when they suddenly become part of YOUR reality. He is thinking ahead (WAY ahead) and has expressed that if & when he needs a service animal, he would like a German Shepherd. Good choice ;) Smart, loyal, fiercely protective, hard working, and beautiful. Just like my son. I couldn't think of a better fit.
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