Monday, June 14, 2010
Tuesday, June 8, 2010
God provides scholarship to summer camp!!!
http://preteen.kidsforthenations.com/
I am so excited for my son! He gets to attend the Christ for the Nations Pre-teen Impact overnight camp in July. The camp is in Dallas, TX (our home state). The school was kind enough to offer him a full scholarship to go. All I had to do was send a detailed email explaining our current situation, and they approved it. He and I will be flying to Dallas to visit friends, family, and of course so he can go to camp. I attended the Youth for the Nations camp at CFNI when I was 15 and it was life changing awesomsauce! I expect great things for him during his 3 day adventure.
Life has been frustrating as of late due to slow doctors. We STILL don't have the results from his ERG test at Pali Momi, as the doctor there seems to think we can wait until next Christmas to know what is what. I don't suppose it really matters at this point though...The results of that test will tell us which don't work, cones or rods in the retina. Either way, there won't be any changes whatsoever to his treatment or follow-ups.
Speaking of follow-ups, the one with Dr. Yeun last week was encouraging. He prescribed polycarbonate, polarized lenses for Gabe in order to protect his eyes from sun and accidental trauma due to sports or life in general. He stressed that it is imperitive that we maximize the remaining vision.
Appointment at HoOpono Low Vision Center in July.
I am so excited for my son! He gets to attend the Christ for the Nations Pre-teen Impact overnight camp in July. The camp is in Dallas, TX (our home state). The school was kind enough to offer him a full scholarship to go. All I had to do was send a detailed email explaining our current situation, and they approved it. He and I will be flying to Dallas to visit friends, family, and of course so he can go to camp. I attended the Youth for the Nations camp at CFNI when I was 15 and it was life changing awesomsauce! I expect great things for him during his 3 day adventure.
Life has been frustrating as of late due to slow doctors. We STILL don't have the results from his ERG test at Pali Momi, as the doctor there seems to think we can wait until next Christmas to know what is what. I don't suppose it really matters at this point though...The results of that test will tell us which don't work, cones or rods in the retina. Either way, there won't be any changes whatsoever to his treatment or follow-ups.
Speaking of follow-ups, the one with Dr. Yeun last week was encouraging. He prescribed polycarbonate, polarized lenses for Gabe in order to protect his eyes from sun and accidental trauma due to sports or life in general. He stressed that it is imperitive that we maximize the remaining vision.
Appointment at HoOpono Low Vision Center in July.
Monday, May 17, 2010
Beeping Baseballs!
Gabe is learning new ways to compensate for his blurry vision. At baseball practice last Tuesday, he got his very 1st hit of the season which literally brought tears to my eyes! He timed the pitches and to him it felt as if he were swinging early, but in reality it was just right. I was so happy for him that we went to Baskin Robbins to celebrate! This was a huge accomplishment for him, as striking out had become very discouraging.
Also, found out that one can buy beeping baseballs to help sight impaired kids enjoy playing catch!
http://www.nbba.org/equipment.htm
On a similar note, we spoke to Gabe's Sensei at Karate and were able to agree on individual kata but no modified sparring due to safety concerns. They were also kind enough to waive the annual dojo membership fee for us.
Also, found out that one can buy beeping baseballs to help sight impaired kids enjoy playing catch!
http://www.nbba.org/equipment.htm
On a similar note, we spoke to Gabe's Sensei at Karate and were able to agree on individual kata but no modified sparring due to safety concerns. They were also kind enough to waive the annual dojo membership fee for us.
Monday, May 10, 2010
Facebook: "Vitamin World Like other parts of the body, the eyes can be affected by the stresses of time. Lutein plays a role in the maintenance of eye health and is the principal Carotenoid found in the central area of the retina called the macula.** Carotenoids are fat-soluble antioxidants found in fruits, vegetables, marigolds and other plants.**"
We started Gabe last week on a daily regimine which includes Lutein, Omega 3 fish oil capsules, and Goji Juice which looks, smells, and probably tastes like a$$. Poor kid. Considering the possible alternative though, he has gone along with it fairly willingly.
As a mom, I am struggling a bit. His Dr. has informed us that anything with wheels is probably no longer safe for him. That is to say that he won't be allowed to cross any major roads alone. He can still ride his scooter, bike, skateboard etc, in confined areas free from vehicular traffic. I will let Gabe decide when he cannot do even that any longer.
We started Gabe last week on a daily regimine which includes Lutein, Omega 3 fish oil capsules, and Goji Juice which looks, smells, and probably tastes like a$$. Poor kid. Considering the possible alternative though, he has gone along with it fairly willingly.
As a mom, I am struggling a bit. His Dr. has informed us that anything with wheels is probably no longer safe for him. That is to say that he won't be allowed to cross any major roads alone. He can still ride his scooter, bike, skateboard etc, in confined areas free from vehicular traffic. I will let Gabe decide when he cannot do even that any longer.
Thursday, May 6, 2010
Facebook | Christine Steed Dunaway
Facebook Christine Steed Dunaway: Gabe had his ERG on Monday, May 3rd. It was a long and painful test for him, because his eyes are so sensitive to light. He was a trooper though and wanted me to be in the room with him. The technician said that he actually did better than some of her adult patients. I am so proud of my son because he was brave. We sang worship songs together in the dark while waiting for his eyes to dialate. It was a beautiful time of peace and I knew God was watching over him at that moment. Later, following the test, we had our "funny moment of the day: at Big City Diner, Gabe was still in dark glasses due to the eye test. The waiter/manager is joking around with us and trying to get Gabe to laugh. He says 'would you like me to bring you a scratch and sniff menu son?' We all died laughing. Sometimes you have to laugh when you would really rather cry...Makes bad things seem more bearable some how.
http://http://www.medicinenet.com/electroretinography/article.htm
http://http://www.medicinenet.com/electroretinography/article.htm
Mine eyes shall see the glory! | causes.com
Mine eyes shall see the glory! causes.com: "Monday the 10th we have the 'round table' meeting at the school with teachers, special ed, etc. to determine the best ways to help Gabe in class. He will of course need special accomodations. I am curious to see what types of resources are available in the Hawaii Dept of Education's arsenal, considering the kids can't attend school more than 3.5 days a week due to 'furlough fridays'."
Subscribe to:
Posts (Atom)
